The Science of Narcolepsy and Idiopathic Hypersomnia
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YouTubeHypersomnia Foundation
The process of receiving a diagnosis can be a difficult journey. It comes with frustrations and confusion that oftentimes turn into internalized guilt and shame. As a person with idiopathic hypersomnia, Haley knows the importance of self-love. Thanks for reminding us to be kind to ourselves as we navigate through our hypersomnias. 💖 What did your diagnosis journey look like? Comment below.👇 | Hypersomnia Foundation
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This year, the Hypersomnia Foundation set out to raise critical awareness for people with idiopathic hypersomnia (IH) in new and creative ways. Caught In This Riptide is a mini-documentary following Beth, a person living with idiopathic hypersomnia and a community member. It's an intimate portrayal of the day-to-day realities of IH and how community is key in managing symptoms. Watch mini-documentary here - https://youtu.be/92OWvttSPUg Producing this film ignited a new passion for visual storyte
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FacebookHypersomnia Foundation
The cause may be unknown, but there is nuance in experts' approaches to understanding idiopathic hypersomnia. At #BeyondSleepy Seattle, Dr. Maski, in her presentation Pathophysiology and Emerging Therapies in IH and narcolepsy, she goes into detail about how experts navigate the spectrum of idiopathic hypersomnia symptoms that have sparked some interesting considerations. To learn more, watch Dr. Maski's presentation on our YouTube Channel. https://youtu.be/cDldJpVjNn4?si=DtuHOiy5qtG2ov8d
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