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Congenital central hypoventilation syndrome, or CCHS, is a rare genetic condition usually caused by a change in a gene called PHOX2B. Normally, your brain is constantly checking the oxygen and carbon dioxide in your blood and adjusting your breathing without you noticing. In CCHS, that automatic system doesn’t work properly. It’s most dangerous during sleep. When someone with CCHS falls asleep, their breathing becomes shallow or stops, and their body doesn’t wake them up to fix it. In severe cas
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