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TikTokcatienielsen
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This is one of the hardest things I’ve ever had to talk about, so please just bear with me through the pauses and moments where I may not be able to get the words out. If telling this story helps even one person especially someone struggling to accept an epilepsy diagnosis then it means everything to me. Something as simple as taking your medication every day can save your life and others lives. #prestonforever #okaybaby #griefjourney #trauma #storytime
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Lilly’s seizures can range from 10 seconds to unknown amount of time she’s had Status epilepticus twice a serious medical emergency defined as a continuous seizure lasting 5 minutes or more, or recurrent seizures without full recovery of consciousness between them. Lilly had many diagnosis LGS is one of her diagnosis. Lennox-Gastaut Syndrome (LGS) is a rare, severe form of childhood epilepsy characterized by multiple seizure types, intellectual disability, and specific abnormal brain wave patter
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